The Mikey Network is happy to share this photo of Marnie, Daniel, and Lars, one of our Mikey’s Kids families, during their recent family trip. Marnie and Daniel initially connected with The Mikey Network two years ago, after their son Lars was diagnosed with Long QT Syndrome.
For parents with children who have heart problems like Long QT Syndrome, having a portable defibrillator can literally be the difference between life and death. Our Mikey’s Kids program provides MIKEYs to families of children who would often not even be able to leave the hospital without one. Having a MIKEY AED on hand and ready to help save their child’s life offers them great peace of mind, and the freedom to live a more normal life.
After recently catching up with the family, we’re happy to report that they’re all healthy and that Lars has yet to experience any LQTS related incidents. This is welcome news to Marnie, who also suffers from LQTS, and has had few incidents since her diagnosis and cardiac arrest in 1999. Although both Marnie and Lars have had few incidents, they understand the need of always being prepared and they make sure to take their MIKEY with them wherever they go.
If you’re interested in helping more families like the Blair family, you can support the Mikeys Kids program by making a donation.