We received a lovely note from Crystal, the mom of one of our Mikey’s Kids, Maranda. Maranda is a very special and unique girl. She has an extremely rare disorder called Andersen-Tawil Syndrome. Only 100 people world wide have been diagnosed with the disorder since it was first discovered in 1967. The heart can be seriously affected, so Maranda needs a MIKEY, and we provided one through the Mikey’s Kids program.
“We are finally heart safe! We are so grateful to have received an fully funded AED (automatic external defibrillator) courtesy of The Mikey Network – the beat gos on. What an amazing program that provides AEDs to families and organizations in need! And the most wonderful and simple application process and best customer service ever! Thank you for your help Morty! We feel so much safer and secure knowing we have an AED in our home and with Maranda at school and wherever she goes. Knowing your child is at risk for cardiac death is difficult, but this organization was bright spot of sunshine in our journey.”
“I just wanted to say thanks again for making a big part of our life easier. So many things are so difficult and so challenging. Many things have layers and layers of process and paperwork. Your organization was so streamlined and wonderful to deal with.”
Thank you so much for your kind words Crystal, and welcome to Team Mikey. We hope you never need to use your MIKEY, but we’re so happy it’s there if you need it.
Maranda is a big fan of Rainbows. She has a Facebook page – Maranda’s Rainbow Connection – where you can go to learn more about her and Andersen-Tawil Syndrome, and leave her an encouraging word, or a picture of a rainbow. Maranda wishes for a rainbow from every person in the world! So please take a moment to send a rainbow to: Maranda’s Rainbow Connection c/o Shoppers Drug Mart 2028 Park St Regina, SK Canada S4N 2G6